Neurofibromatosis Association WA | INFORMATION & SUPPORT

NFAWA community Registry for people with Neurofibromatosis (NF) in Western Australia (WA). Join the registry to be part of the NF community in WA

Upcoming Events

NFAWA Annual General Meeting
The Niche Lotteries House
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14 Nov 2026, 11:30 am – 3:30 pm
The Niche Lotteries House, 11 Aberdare Rd, Nedlands WA 6009, Australia
Join us as we reflect on our shared milestones over the past year, discuss our goals for the future, and celebrate the incredible strength of our Western Australian NF community. Whether you’ve been part of NFAWA for years or are looking to connect for the first time, welcome!
Mandurah Christmas Lights Trail Picnic SAVE THE DATE
Location is TBD
RSVP
12 Dec 2026, 5:00 pm – 9:00 pm
Location is TBD
Gather around to see the Christmas light turn on for Mandurah. Any excuse for a picnic

"We are empowering WA families to live well with Neurofibromatosis"

About Us

We are a WA-based community supporting children and families living with Neurofibromatosis through information, connection, and advocacy to help them live well.

Resources

Find trusted information, tools, and support to help your family navigate life with Neurofibromatosis in WA. Read our blog for the latest news updates and NF information.

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Support

Connect with people and services that understand NF and are here to support you and your family.

Donate

Support our mission to improve lives affected by NF—your donation funds local NFAWA office with resources to deliver our services.

Stan Perron Charitable Foundation generously funded the development of our educational package aimed at reducing stigma, a vital 3-year project supporting our community.

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"We are empowering WA families to live well with Neurofibromatosis"

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