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"We are empowering WA families to live well with Neurofibromatosis"

About Us

We are a WA-based community supporting children and families living with Neurofibromatosis through information, connection, and advocacy to help them live well.

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Resources

Find trusted information, tools, and support to help your family navigate life with Neurofibromatosis in WA. Read our blog for the latest news updates and NF information.

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Support

Connect with people and services that understand NF and are here to support you and your family.

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Donate

Support our mission to improve lives affected by NF—your donation funds local NFAWA office with resources to deliver our services.

Upcoming Events

  • Flight Club Fremantle
    09 Sept 2026, 6:30 pm – 8:30 pm
    Flight Club Fremantle, 2 South Terrace, Fremantle WA 6160, Australia
    Social Darts Night - Have some fun and do your best to take flight. Wear you best shirt and a fabulous Tie.
  • The Niche Lotteries House
    13 Oct 2026, 6:00 pm – 7:00 pm
    The Niche Lotteries House, 11 Aberdare Rd, Nedlands WA 6009, Australia
    Social @ the Niche is a casual networking event where people can meet. chat and enjoy a relaxed evening together.

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Our Partners

Stan Perron Charitable Foundation Logo

Stan Perron Charitable Foundation generously funded the development of our educational package aimed at reducing stigma, a vital 3-year project supporting our community.

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CONTACT US

Neurofibromatosis Association of Western Australia Inc

The Niche, 11 Aberdare Rd, Nedlands, WA 6009

(08) 6457 7488 (reception)  

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NF Community Registry

Do you or someone you know live with have Neurofibromatosis?

Click the link below to join our registry and become a member to support, advocate and make a difference for the NF community.

Neurofibromatosis acknowledges the Aboriginal people of the many traditional lands and language groups of Western Australia

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